Tag Archives: SMILE

SMILE trial: Summary of Concerns

A trial of The Phil Parker Lightning Process on children newly diagnosed with ‘CFS/ME’ (Chronic Fatigue Syndrome/Myalgic Encephalopathy or Myalgic Encephalomyelitis)  A small online focus group formed in October 2010 to share various concerns after the SMILE trial passed approval by … Continue reading

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ASA Ruling on Phil Parker Group Ltd. August 2012

A complaint was submitted to the Advertsising Standards Authority by Hampshire Trading Standards. To summarise, the ASA upheld that: 1. The claims with respect to treatment of ME/CFS, in particular the 81.3% claims of success, were misleading and that LP … Continue reading

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The Curious Case of the SMILE Research Collaborators

The Advertising Standards Authority Adjudication re: Alastair Gibson’s unsubstantiated claims about The Phil Parker Lightning Process in a sponsored link to his “Withinspiration” website dated June 2010. Alastair Gibson is named by Dr. Crawley on th NHS REC form as … Continue reading

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Complaint to General Medical Council May 2011

To GMC 6th May 2011 I wish to report Dr. Esther Crawley for matters relating to research-related fraud and misconduct that cast serious doubt over her fitness to practice and which I believe are serious enough to warrant investigation by … Continue reading

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Complaint to National Patient Safety Agency – May 2011

To: Chief Executive of NPSA Date: 3rd May 2011 Re: Complaint Ref. 10/H0206/32 submission date 24.05.2010 Assessing the feasibility and acceptability of comparing the Lightning Process with specialist medical care for Chronic Fatigue Syndrome or Myalgic Encephalopathy (CFS/ME) pilot Randomized … Continue reading

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AYME Petition – covering letter

For the attention of The Association of Young People with ME: Board of Trustees Chief Executive President Copies sent to: Re: Petition: AYME – Denounce PACE and SMILE I would like to inform you of the growing concerns many sufferers … Continue reading

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GMC says case closed May 2011

From GMC 26th May 2011 I refer to our previous correspondence regarding your complaint about Dr Esther Crawley. We have now completed our enquiries into your complaint and both a medical and a non-medical case examiner have considered the case. … Continue reading

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Reply from NRES – no further action – 14th April 2011

Our Correspondence with Director of National Research Ethics Service From NRES Director – Further to your email of 8th April, complaints must be managed within the policy timelines. I appreciate that this, as an ongoing study, may generate new issues … Continue reading

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NRES reply to our response to December 2010 ethics review of SMILE – 6th April 2011

Letter from National Research Ethics Service 6th April 2011 –  Re: Pilot Study of Lightning Process in Children with ME/CFS (SMILE) Thank you for your letter of 16 January 2011 about this study. NRES is aware that a number of … Continue reading

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NRES publishes lies about SMILE study – 1st April

1st April 2011 To: Joan Kirkbride <joan.kirkbride@nres.npsa.nhs.uk> Cc: janet.wisely@nres.npsa.nhs.uk, “sally.davies” <sally.davies@dh.gsi.gov.uk>, “Bill.Davidson” Bill.Davidson@dh.gsi.gov.uk Dear Joan, Thank you for your mail of 16th March. I believe you may have again been misled by the SMILE research team. You said: “1. It … Continue reading

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