Tag Archives: research

SMILE – Bristol University Centre for Child and Adolescent Health

From the Bristol University website: updated 8th March 2011 SMILE – Specialist Medical Intervention and Lightning Evaluation What is SMILE? SMILE is a feasibility study to see whether it is possible to recruit young people into a study to compare … Continue reading

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Petition for AYME to Denounce PACE and SMILE

CALL FOR ACTION   This petition calls for the Association of Young People with ME (AYME) to take the necessary action to address the serious concerns outlined below, or cease operating as a charity for children and young people with … Continue reading

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Full Wording of Petition for AYME to denounce PACE and SMILE

CALL FOR ACTION This petition calls for the Association of Young People with ME (AYME) to take the necessary action to address the serious concerns outlined below, or cease operating as a charity for children and young people with ME.  … Continue reading

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NRES confirm that Alastair Gibson is not providing any research intervention with the children – 4th March 2011

Thank you for your further correspondence on this matter. NRES is sensitive to the fact that this study has caused great concern to some within the ME community and NRES has received extensive correspondence on the study and the intervention … Continue reading

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TYMES on PACE “ME – the truth about exercise and therapy”

GUARDIAN LETTER ABOUT THE PACE TRIAL from Jane Colby, Executive Director of The Young ME Sufferers Trust.      “ME – the truth about exercise and therapy” “Reporting on the PACE trial of treatments for ME/CFS by Professor White and colleagues, Sarah Boseley … Continue reading

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Letter re: Daily Mail article by AYME President on 12th Feb. 2011

Letter to Ethics Service 14th February 2011 I would like to draw your attention to an article written by the President of AYME, Esther Rantzen, that was published in the Daily Mail on-line on 12th February. She has discussed her … Continue reading

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Ethics Service apologises to Phil Parker 4th Feb. 2011

Letter from NRES 4th February 2011 Assessing the feasibility and acceptability of comparing the Lightning Process with specialist medical care for Chronic Fatigue Syndrome (CFS/ME) – pilot Randomised Controlled Trial Further to my letter of 6 January 2011. I would … Continue reading

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Our Response to December 2010 Ethics Service Review of SMILE 16th January 2011

Letter To:  Mrs Joan Kirkbride, Head of Operations, National Research Ethics Service 16.01.2011 Dear Mrs. Kirkbride, Re: Pilot Study of Lightning Process in Children with ME/CFS (SMILE) Thank you for your email of 6th January. Please accept permission to re-post … Continue reading

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Ethics Approval Upheld: Letter from NRES 6th Jan. 2011

Letter from Joan Kirkbride, Head of Operations, England, National Research Ethics Service 6th January 2011 Assessing the feasibility and acceptability of comparing the Lightning Process with specialist medical care for Chronic Fatigue Syndrome (CFS/ME) – pilot Randomised Controlled Trial This … Continue reading

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Letter to SW2 Ethics Committee October 2010

9th Oct 2010 FAO Mr. Richard Ashby, Chair, South-West 2 Research Ethics Committee Dear Mr. Ashby, Re: Dr. Crawley’s Study of the Lightning Process with Children with CFS/ME “The study has been scrutinised by the South West 2 Research Ethics … Continue reading

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