Tag Archives: Action for ME

Complaint to National Patient Safety Agency – May 2011

To: Chief Executive of NPSA Date: 3rd May 2011 Re: Complaint Ref. 10/H0206/32 submission date 24.05.2010 Assessing the feasibility and acceptability of comparing the Lightning Process with specialist medical care for Chronic Fatigue Syndrome or Myalgic Encephalopathy (CFS/ME) pilot Randomized … Continue reading

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Petition for AYME to Denounce PACE and SMILE

CALL FOR ACTION   This petition calls for the Association of Young People with ME (AYME) to take the necessary action to address the serious concerns outlined below, or cease operating as a charity for children and young people with … Continue reading

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Full Wording of Petition for AYME to denounce PACE and SMILE

CALL FOR ACTION This petition calls for the Association of Young People with ME (AYME) to take the necessary action to address the serious concerns outlined below, or cease operating as a charity for children and young people with ME.  … Continue reading

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Our Response to December 2010 Ethics Service Review of SMILE 16th January 2011

Letter To:  Mrs Joan Kirkbride, Head of Operations, National Research Ethics Service 16.01.2011 Dear Mrs. Kirkbride, Re: Pilot Study of Lightning Process in Children with ME/CFS (SMILE) Thank you for your email of 6th January. Please accept permission to re-post … Continue reading

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Ethics Approval Upheld: Letter from NRES 6th Jan. 2011

Letter from Joan Kirkbride, Head of Operations, England, National Research Ethics Service 6th January 2011 Assessing the feasibility and acceptability of comparing the Lightning Process with specialist medical care for Chronic Fatigue Syndrome (CFS/ME) – pilot Randomised Controlled Trial This … Continue reading

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CFS/ME Paediatric Service RNHRD Bath

On the Royal National Hospital for Rheumatic Diseases website December 2010: Chronic Fatigue Syndrome / ME Service for Children & Young People About Chronic Fatigue Syndrome/ME (CFS/ME) CFS/ME in children and young people is surprisingly common. Around 1 in 100 … Continue reading

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Letter to SW2 Ethics Committee October 2010

9th Oct 2010 FAO Mr. Richard Ashby, Chair, South-West 2 Research Ethics Committee Dear Mr. Ashby, Re: Dr. Crawley’s Study of the Lightning Process with Children with CFS/ME “The study has been scrutinised by the South West 2 Research Ethics … Continue reading

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